The Luisa Marisol Story

The new Luisa Marisol

Back in January, when we met her for the very first time, Luisa Marisol needed a custom wheelchair due to her condition after having meningitis at the age of one; or so we thought. We started looking for options to see how we could help her and her family. We got word that there was a wheelchair team that was coming to give wheelchairs to children in Antigua in February.  So a team from a local church plant and me set off on an early morning journey to Antigua.  When it was her turn, the occupational therapist removed her bulky clothing to fit her for the chair and all of our jaws dropped because she was literally just skin and bones, weighing just seventeen pounds at twelve years of age. Her condition was so severe, that the therapist stopped what she was doing to take us to a nearby hospital that has a program for malnourished children. The hospital is called Hermano Pedro and has a program to help low income families receive high quality care for their children. The doctor told us that her only chance for survival and full recuperation was if she were to be admitted into the nourishment program for several months. This was a difficult decision for her parents to make because they thought that they were just going to Antigua to get her a wheelchair.  So, we left her there in February and we prayed, putting her in God’s hands.

Luisa Marisol January 2011

As the time passed, the local pastor and I would go and visit with the family to check on her status but they really couldn’t tell us much. They were calling the hospital regularly, but were unable to go visit her because of the expense of the long trip to Antigua. On Friday July 8th, we went back for a visit and to our great surprise, Luisa Marisol was there and looking like a completely different person. She now weighs 28 lbs and her arms and legs have filled out nicely. The change is so drastic that her mother didn’t even recognize her when she went to pick her up and had to ask a nurse to show her which child was hers! The mother told us that she went back to the place where the wheelchair distribution was and that she is scheduled to get a wheelchair in August.

Luisa Marisol with the occupational therapist

The best part of this process is that the parents are getting an education about the proper way to prepare food for her and now she is on different medications. The father was in tears as he told us about the lessons that God has taught them through all of this. We are so thankful to God for giving us the opportunity to meet her and for the miracle that HE has done in this family. They will be presenting her in the Coban church plant, De La Comunidad, after they get her wheelchair and now know that there is a group of local Christians that care about them.

Luisa Marisol Admitted in Antigua Hospital

Luisa Marisol being checked by an occupational therapist

As many of you know, we carried Luisa Marisol and her family from Coban to Antigua on Friday to get a new wheelchair. Little did we know, that she would end up being admitted in the hospital instead! I already knew she was malnourished from our visit in her home, when she was fully clothed. However, when the occupational therapist (OT)  examined her to prescribe the correct wheelchair and removed her shirt; I think we were all stunned! The OT is a missionary in the Antigua area and knew of a very successful malnutrition program at a local hospital. Luisa Marisol’s parents were very hesitant to leave her there because of the six hour distance, but they realized that it was the best thing for her well being. One huge advantage that they have is that the hospital is a “social work” style, hospital that allows poor families to pay only what they can afford for her treatment. The name of the hospital in Spanish is Obras Sociales del Hermano Pedro (in English, Brother Peter’s Social Work)  and it is located just a couple of blocks from Antigua’s central park. Please pray for Luisa Marisol’s parents, Sebatian and Luisa; that they will let her stay in the program as much time as needed for her to gain enough weight. It is very difficult for Q’eqchi’ people to trust in people at a hospital that are strangers to them! The family was promised that Luisa Marisol will get her wheelchair after she gains enough weight to be able to size it correctly.

Wheelchair Update for Luisa Marisol

Luisa Marisol

We appreciate those of you who have been praying for little Luisa Marisol and her family’s need for a custom wheelchair! In the past, we have worked with a team of experts who came and measured a group of children to fit them for wheelchairs. This requires two trips and the wheelchair parts are packed in plastic bins and brought down as luggage. This time, however no such trip had been planned so when we met Luisa Marisol we took pictures and shared them with our friends and missionary colleagues. Hope Haven International happened to have a wheelchair giveaway scheduled for February in Antigua where therapists and doctors prescribe the exact chair a child needs and it is given to them free of charge! So we sent a request to them and Luisa Marisol is scheduled to get her wheelchair on February 11th. Our Humanitarian Outreach always ties the recipients together with local Christians to give them a support base. Pastor Willie and a member of the new church plant De La Comunidad will be driving Luisa Marisol and her family to Antigua for this event. Please keep the logistics of this outreach in your prayers!

Two Little Guatemalan Girls with Special Needs..

Your Prayers Are Needed..
God opened the doors last week for us to kick off the new year with visits to two homes of special needs children in Coban, Guatemala. The purpose of our Humanitarian Outreach is to help under privileged Guatemalans build relationships with local Christians to give them a support net. This shows them the true love of Christ; it’s a great privilege to serve them!

Dora’s Detached Shoulder Blade

Dora To Have Neurological Exam..
Dora has a mild grade of Spina Bifida & she was born with her left shoulder detached from her collarbone. She really seems to have full range of motion, but complains a lot about bone pain. She is only four years old and my main concern is that as her bones and muscles grow that her detached shoulder blade may grow to the point that it effects her spine  or other parts of her body. A missionary friend of mine in Guatemala City is setting up an appointment with a respected neurologist soon, so that he can advise us of possible treatments or surgery.

Luisa Marisol

Luisa Marisol Needs a Custom Wheelchair..
Luisa Marisol is 12 yrs. old & her condition is due to a high fever she had with meningitis as a baby. She needs a wheelchair that tilts back to allow the muscles in her body to relax! We will soon begin the process of trying to get her fitted for a wheelchair which would truly be a huge blessing to her and her family! We would appreciate your prayers for both of these precious little girls as we try to serve them and connect them with local Christians who will be an example of God’s love to both families.

Great News From The Coc Family

Catherine with Hector & Carmen

Catherine with Hector & Carmen

We have been blessed to have a strong friendship with Hector and Carmen Coc for many years. We first met them at a patient screening for children with physical impairments in March of 2007. Their daughter Evelin Suleymi was a special needs child who was born with Spinal Bifida and Hydrocephalus. Our ministry helped her receive needed surgeries and a custom wheelchair before she went home to be with Jesus on January 8, 2008. Our involvement with them during a tough time in their lives built a strong bond between our families. When they returned Evelin’s wheelchair to us, Maribel told Carmen about the necessity for a woman to take folic acid several months prior to becoming pregnant to improve the chances of the fetus forming correctly.  Before they left, Maribel gave Carmen a huge bottle of folic acid with about a year’s supply. We visited their home with a mission team last August to share a meal with them. At that time, I happened to notice that Carmen had put on some weight and I asked Maribel if she thought that she could be pregnant. Maribel didn’t think so and I didn’t have the nerve to ask. This morning I received a phone call from Hector saying that Carmen gave birth to a perfectly healthy baby girl last night. Praise the Lord for His faithfulness with this family! We are so happy for them and are anxious to see her. Click here to view Evelin Suleymi’s story.

A Perfect Fit

On Monday, November 24th, we went on a long journey that included four hours of driving and about an hour boat ride. The purpose of the trip was to measure a five-year-old Guatemalan girl for a custom wheelchair. Her name is Gina Rodriguez and she lives in Livingston, Guatemala, which is a peninsula on the western edge of the Caribbean Sea.
Gina’s family, as well as the majority of people that live there, are of the Garifuna heritage. The most amazing part of this story is that this chair was actually custom made to fit another little girl. The chair was brought here by our friends from Kaitlin’s Mobility Foundation when they brought a group to Coban in 2007. The little girl who was originally fitted for the chair passed away before it got here, and we had actually had the chair since September of 2007. We had tried on many occasions but we never found the perfect home for the chair until now. When we were contacted by a friend of Gina’s family who found us on the Internet, I had a feeling that God had been saving this wheelchair for her. As you can see in the picture, it was a perfect fit! God knew all along who the chair was being built for.

Update – Evelin Suleymi went home to be with the Lord!

This article is a continuation click here for the original post.

On January 8, 2008, we received a surprising telephone call from Hector (Evelin’s dad) saying that she had passed away in the early morning hours. This news came as a huge shock to us. He had called us a few weeks before to report that she had mastered her wheelchair and could move it all over their house.

We are currently making plans to spend some time with the family. We had a lot of contact with them last year because of Evelin’s surgeries and the wheelchair that was donated for her. We became very close to Evelin and her family. Please continue to pray for this family and their loss.
Statistically, children that are born with both Hydrocephalus and Spina bifida have less chance of living to be adults unless they are fortunate enough to have surgery at the time of their birth. Evelin was four years old when she was able to have the needed surgeries.
Even though she will be greatly missed here on earth, we are happy to know that she is now in a better place. She will not have to depend on a wheelchair to get around or live with the many challenges caused by her disability.

Special Needs Children’s Update – In God’s perfect timing.

This article is a continuation click here for the original post.

On September 15, 2007 Doug Whitfield and Mike McHargue of Kaitlin’s Mobility Foundation returned to Coban to bless the remaining families with custom wheelchairs that had been planned for June. The Seattle based organization specializes in helping families with the extra challenges required to care for their special needs children. A summer airline embargo kept them from bringing extra baggage filled with wheelchair parts when their whole team was here in June 2007. However, they were determined to see these children get their promised new rides and therefore they returned to make it happen.

On the morning of the fifteenth, we were excited to see that all of the six families were in attendance for the event at a local church. We had confirmed with the families in the days leading up to the activity but we weren’t sure that they would all be able to be there. So, it was a great blessing to see them all there.
If you have been keeping track of our current events, you may recognize little Evelin Suleymi in one of the pictures. She is a little girl who was born with Hydrocephalus and Spina bifida and we were able to help her get some needed surgeries back in the spring of 2007. She had recuperated from her operations and she also got a custom wheelchair as a part of this wonderful outreach. Evelin’s has since passed away, you may access the story here, Evelin Suleymi Coc.
We want to give special thanks to Kaitlin’s Mobility Foundation in Seattle, Washington and anyone else who made it possible for these children and their families to receive a much needed gift. Also, please continue to pray for those who care for special needs children here in Guatemala and everywhere else in the world.

Special Needs Children’s Outreach June 23 – July 2, 2007

This summer, we were privileged to join with “Kaitlin’s Mobility Foundation” to bless many special needs children from the region of Alta Verapaz with donated custom wheelchairs. The organization’s directors, Doug and Carol Whitfield, brought a team from Seattle, WA to help distribute the wheelchairs and teach rehabilitation practices to the families. Their team included two special education teachers, a physical therapist, a registered nurse and a family with many years of experience with special needs children.

Due to an airlines embargo, the team was unable to bring all the wheelchair parts and the other donated items that they collected to bless many families. A decision was made for Doug and Mike to return after the embargo restrictions were lifted to give the donated wheelchairs to the other children. On September 15th, an activity is planned at a local church and the wheelchairs will be given to the remaining families that have been patiently waiting.
These pictures will give you an idea of the many activities that took place during the week. Each family had a session with the nurse and all their children were given vitamins. The special education experts taught the parents how to communicate with their children that are unable to speak. The team was used to help with patient evaluation at a local student center for under privileged children and they held a seminar for local health workers at the church.
The sacrifice of this team will be remembered by many people for years to come because of their willingness to share their talents and expertise. Without compassionate and caring people, these children and their families would never have the luxury of having a wheelchair to help them function.

Successful Surgery for Evelin

On Tuesday, May 15, 2007, the neurologists were able to successfully insert a shunt into the head of Little Evelin Suleymi Coc. They also did surgery on her back to reduce some of the tissue mass that she has due to Spinal Bifida. It was also necessary for her to have another operation on her back and this was completed on Tuesday, May 29th. She recuperated a few additional weeks in the national hospital in Guatemala City where the surgeries were done.

Evelin also is one of the remaining children that will receive a custom wheelchair on September 15th. Doug Whitfield, Co-director of “Kaitlin’s Mobility Foundation’ and Mike McHargue will be returning to Coban to complete the delivery of the donated wheelchairs. Their organization specializes in the care and rehabilitation of many special needs children.
Please continue to keep Evelin and her family in your prayers. Children with hydrocephalus and that have Spina Bifida are a big responsibility and they require lots of attention and care.

I have been crucified with Christ and I no longer live, but Christ lives in me The life I live in the body, I live by faith in the Son of God, who loved me and gave himself for me. - Gal. 2:20

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